Happy anniversary to our room!

Hi everyone,

So woke up and realized today is the two year anniversary of Jess and I getting our double room. Remember that there are very few double rooms and are obviously nine times out of ten reserved for married couples. But since we argue like a married couple, LOL, they decided to give it to us! Not really!

They gave it to us because we were literally only compatible with each other as roomates. No other roommate situation really worked out for either of us. Secondly we were working so hard in treatment. It was a huge hurdle to have us in the same observation room in the first place as we both struggle with self harm. Having us be in a private room with no other roomates to supposedly keep an eye on us, stirred up a lot for the staff. But Jonathan’s solid think outside the box yet cover all the basis of any fears/ doubts/ whatever that came up won in the end.

This room is my home one hundred percent. I rarely leave it. I’ll never ever leave this room unless I move out and then Jess and I will just have another double room somewhere else! I just

Love love it! The only things that are missing are: a trampoleen, a net swing, two cats, a guiney pig, fridge, microwave, mountain of toys! So yay our room and yay us!!

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The tv show Switched at birth will never be completely disability centered until it has audio description

This is a very important subject I need to let my readers know about.

There is a teen drama on ABC family called Switched at Birth. It’s about two families who’s daughters were accidentally switched at birth. The catch is that one is deaf.

This show does a great job of exploring many issues that occur in the deaf community. And of presenting a character with a disability as an actual person nont a lesson in disability or something. A huge feature of the show is the use of deaf actors and ASL which is used as often or more than English.

The show also features other disabilities, for example Down’s syndrome. It would be nice just to round things out if they included a blind person but hey you can’t get everything in life LOL!

One thing I feel us blind viewers have a right to, and will eventually get, is audio description for this show. For those who don’t know audio description is an audio track that runs alongside the audio of the show. It comments on all visual aspects of the show such as setting, character appearance, facial expressions ETC. In the case of this show it’s even more needed as much of the communication is in ASL so many silent conversations going on. The audio describer would not only read the subtitles but comment on the facial expression and actions of the characters as they’re communicating.

Though similar to closed captioning for some reason, audio description is far less available or has been. Many advocacy groups have pushed for it’s inclusion and there have been great steps including several laws mandating that a certain percent of shows on a tv network have AD, as well as movie theaters, and now internet streaming platforms.

The accessibile digital media project has taken great strides to get audio description included in most netflicks content. This is all great news.

One would think this show of all shows out there, being focused on disability, having something so visual in it’s content ETC, would automatically have gotten AD without much thought. Unfortunately this is not the case. Below is a blog post that is on the accessibile digital media project’s blog which I wrote and has been shared with several different people though not enough.

https://netflixproject.wordpress.com/2016/06/14/why-we-want-audio-description-on-switched-at-birth/

Please share both these posts with as many as possible.

On the audio description side many audio describers have been contacted. The results on this end have been extremely positive, with theseprofessionals coming to the same conclussions we have, why wasn’t this done from the start? And saying that in the skeme of things it wouldn’t be very expensive or hard to do.

The big problem we’re having is who would give license for the show to be described. As the show is ending this coming year, and it’s very hard to get shows in AD once they’re off the air, it’s unlikely this will happen through the network itself. Efforts to connect with people at the network and really have a dialogue have not gone well. The producer seems to not want to do much about this.

However there are other avenues. Netlficks has the series as part of it’s content. And it’s gotten the most pushing to make it’s content accessible. However contacting anyone at netflicks has lead nowhere with literally no response. Our only other option at this time is apple TV which also has a lot of audio described content. But again we’re unable to locate a contact person to discuss this further.

I believe this will happen. It will just take awhile and a lot of advocacy which we can’t do alone. If you’re interested in helping doing one of the following would be much appreciated: Share this post, or the linked blog post with as many as possible! If you’re a part of a magazine, newspaper, or other media that supports those with disabilities consider doing an interview with us. The blog post linked has contact info for the people at netflicks. It would be worth a huge try contacting them. Mostly we just need more people on board to get this going.

There was a show called daredevil about some blind guy. Just didn’t sound like something I could stand two minutes of watching. But anyway, there was this huge outrage that the show was about a blind person and wasn’t audio described. Though this issue isn’t as clear cut, (and some want to debate over the wisdom of ASL being spoken) it’s very similar. We need to get that kind of momentum going and the only way to do so is to work together discussing options and next steps, and politely but firmly insisting on equal access to a show that’s been called one of the most disability centered pieces of media currently. However as the subject states it will never be fully disability centered until the blind have access to it.

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Please help get the TV show strong medicine uploaded to youtube!

So one of my favorite shows is called strong medicine. It has six seasons and ran on lifetime TV for several years. I have season one on DVD but for some stupid reason none of the other seasons are on DVD.

Below is a summary of the show

Tough female doctors treat an exclusively female clientele at the Rittenhouse Women’s clinic, tackling female-centric issues and trying to make the world a better place in a male-dominated society.

Dr. Luisa Delgado ran the South Philly Women’s Clinic so that poor women could get the medical help they needed. Dr. Dana Stowe did medical research on cancer to help women. Together they now run a women’s clinic at Philadelphia’s Rittenhouse Hospital to help all women

At one point someone had uploaded all the episodes but then the copyright hounds found out! I’m sure there’s a way to get around this somehow. There is one full episode on youtube at the moment.

https://www.youtube.com/watch?v=Iq3BX7PNmZ8

This is part one. Just click on this and watch it firstly, to see what a great show it is! Then go on to this person’s channel and write a public comment asking to upload. Or do a private message. I did last week but got no answer at all. If people are really interested we can make an FB group for the show, upload to an unlisted account and get the episodes that way. That’s what happened with another show of mine and it worked out well. If anyone has any other ideas please let me know and share this post!

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Awesome first individual meeting with Stephanie

So I’m really happy to report that I had an amazing first meeting with Stephanie yesterday. She’s very energetic passionate and just a great person to talk to!

Before this she did ABA with autistic children, as did one of the other new PRSCS Anna. From searching through resumes I’m finding special ed is a common past field for people applying here as are developmental disability and youth services.

Anyway. We just had an amazing talk. She already has read my records since the meeting with Jonathan. Absolutely loves Jonathan! Says she really agress with his clinical philosophy on everything especially what we went over with self-injury. She says she loved the two hour training she and the other new PRCS got a couple days ago. She didn’t think it would be two hours of course and Mr. J probably didn’t either LOL! I told her his favorite hiding places the garage and park. She says she wants to keep “picking his brain”

I talked about my family history, how I got to Chicago how I got from FP to here and basically my whole life as I do ramble on and on. But she kept up with everythingwhich is always impressive. She concluded it sounded like I’ve been judged a lot in my life and that I’ve really done well for myself. We had a nice discussion about how disjointed different services are in mental health care/ humans services so you don’t ever have one provider who has a whole picture of the person. We also talked about how disability is so misunderstood and just so often ignored.

So we’re gonna basically keep going where Edith left off which I never thought was possible. She’s gonna bug me to take me for walks. I’m going to have her call cat shelters for me and make the strong case of how saying I can’t go because I’m blind is really messed up. We’ll deal with other things as they come up. I would like to work on this visit home because my family continues to stall endlessly. And yeah! We’ll just see what happens. I’m very impressed and can actually say Monica made a good choice. Will keep you posted.

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very positive meeting with my new Caseworker Stephanie

Hi everyone,

Just a quick update. Had an awesome meeting yesterday with Jonathan and Stephanie. Mr. J was his extremely talkative self so of course we met for like an hour and a half. In his classic round about way he gave Stephanie all the information she needs to know about my self-injury history my yrust issues and triggers in relationships while giving me plenty of room to put in my thoughts. She was very agreeable to everything and just seems very upbeat.

We’re meeting tomorrow night. We set that time as she was taking me backupstairs and at one point thought we might do today. She hadn’t written it down so thought she had missed our appointment this morning. She came down all apologetic and wanting to check in. I’m like wow she’s good!

She’s funny too while Mr. J was on the phone she was saying how Jonathan reminded her of batman LOL! I have no idea why but she seemed slightly disappointed I don’t like super heros! I wonder if she’ll make fun of my “depressing books” I.E cathy glass ETC like Edith did. I bet I could get her to work with me on ASL she eagerly told me Kat was already teaching her some. So I’m very hopeful and comfortable going into our first meeting. ,

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waiting monday

Hi everyone,

Have had an ok day. Was stressed in the morning sending off an e-mail to Jonathan with all the information for the applicants from this weekend attached correctly, wanting to make sure everything was there. I’m getting antsy as clearly we have a good set of applicants but Jonathan as his busy self hasn’t had time to sit down and write them, or if he has written some which he says he has, he hasn’t been able to check e-mail to see if they’ve responded. Nor to set up or do any interviews. Yet I know how desperately he needs these positions filled and that’s a lot of why he’s busy. I don’t know how long people usually wait to be called to an interview after applying before moving on to something else. I also know that people usually apply for a few jobs at once. I’m afraid the longer we wait even though it’s only been a few weeks of this, the harder it will be to get the really good people we’ve picked out.

Similarly I was supposed to meet with Stephanie my new caseworker today with Jonathan. As a way to smooth out the transition and be sure she has his input on my treatment issues and overall personality. I am veery reluctant to have a meeting with her before this point. But I haven’t been able to get ahold of Jonathan and not sure she’s around today.

So I guess it’s been a day of waiting around impatiently. I have been reading a blog about the show in treatment that I’ve been re-watching lately. Below is the link.

http://www.jung-at-heart.com/jung_at_heart/in-treatment-season-3/

That’s really all for today.

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catching up on this week

Hi everyone,

So a quick post. Not sure if I wrote since the weekend/ Monday. This week has been good.

We got our haircuts on Tuesday I think it was. I’m so happy I don’t look like an izzitt anymore yayAnd I have to say Betty and Nicks is awesome thanks Mr. J for recommending!

Other than that had the best time sorting through resumes. Did some networking and guess what? Found two music therapists who aare applying. I’m totally off the wall happy! This is so rare in this state anyway. If I were putting out a job and saying expressive arts therapy training is a plus in MA I’d get ten million aps mostly from my own school! In IL and I’ve heard, bordering states no such luck. A lot of art therapists if anyone, but not a whole lot of music therapists doing psych work you have to dig to find them. And I certainly have tried as I did find Gina the dance therapist b ut it’s a challenge. However I told one music therapist who put the posting on the music therapy listserve, and that’s where I got my two people! Hoping to reach out to related arts therapy people and have the same done.

But OMG these job websites really know how to make money! I know indeed is free. But some of these others like one it was over a hundred dollars to have your job up for a year it’s like really? I guess they think these employers have a lot of money to invest.

But yeah that’s my big project until further notice and I love every moment of reading sorting and just the whole thing!

I got to see Mr. J’s family today they came for a visit. And I got to talk with Mr. J for a few minutes as well. I haven’t as of yet had my official sit down with Stephanie the new PRC. I really want Mr. J to be there and he does too. With how I take change, and Stephanie as an outgoing probably speaks her mind kinda personality. She could say something that I’ll take wrong as I’m really anxious about opening up to her, even saying how hard it is to open up is opening up. So yeah I’m glad I have his support for this meeting. It more than makes up for him skipping out on Edith’s last day.

So over all a good week.

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My big sister is blasting through school!

I’m soo proud of my big sis. She’s like over halfway through her two courses. She’s really doing amazing. I don’t know how she deals with the craziness around here, her emotional and physical health ups and downs and tackles schoolwork. But she’s like amazing! She’s doing well on tests and papers. I love hearing about her good grades and supporting her all I can by making sure she gets to and from school safely on the van. I wasn’t sure with everything going on internally how this would be. I knew it would be really stressful. I’m so impressed that even in the hospital for scary medical issues she got work done! She was thinking of dropping a class that she’d got halfway through which would have been ok with me if she needed to. But she kept going and is doing really well. When she’s done no matter what grades she’s getting I’m gonna get her a special present or meal or something. Shhh don’t tell her!

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Book review: Choke by Diana Lopez

I just finished a very well written novel with a sobering message about a dangerous risky behavior. It also is about self-discovery and cats.

Windy is in eight grade. As she’s starting high school soon she feels pressure to know what she wants to do. To have a boyfriend and be cooler. Her best friend Elina is seeming more and more imature as she hangs on to childhish things and makes up silly words for fun.

Meanwhile there are changes at home as her Dad is seeking a new job and seems to be changing his appearance to fit. With pressure on all sides the only thing that keeps her sane is her cats, especially a new one that she has to hide from her mom because mom said no more cats.

Things completely change when Nina comes to school. It’s said she was kicked out of her last school but this makes her right off cooler than others there. When the popular girls bully Elina and Windy Nina stands up for them. After their first or second conversation Nina introduces the concept of “breath sisters.” Windy doesn’t know what this means but think it sounds like BFFS but better.

Shortly thereafter Windy and Nina head to the mall. It’s here that Nina explains about the choking game. This is a thrill seeking stunt where you choke yourself or another person. The point is to deprive your brain of oxygen so you pass out and then get a head rush. It sounds horrible put like that and it is! People have died or gotten seriously hurt. But of course Nina puts another spin on it. She says the game is about trusting yourself and each other. The person only chokes you until you tap their arm and then they stop. She says there’s nothing wrong with it because it’s not like drugs or alcohol.

Reluctantly Windy plays the game. She doesn’t pass out she just can’t ya know go without air for that long. She really doesn’t see what the fuss is about. Except having played the game gives her a new cool girl status that she does like. In the back of her mind throughout the book she questions the safety of this “game” she sees others playing it she luckily only plays twice.

The book alternates her friendship with Nina with her search for something she’s passionate about. The ending is upsetting but also hopeful.

The main message is how disturbing the choking game is. Before reading this book I never heard of this. I looked on youtube and there are news stories about it. And a lifetime movie.

I hope none of my followers are playing this game. If you know someone who is playing please tell them to stop or tell an adult. They’ll probably hate you but you’d rather have your friend mad then dead or like Nina (read to find out what happened to her)

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Good day today and looking forward to the weekend

So actually got to see Jonathan today! Turns out right when we were about to meet at two last Friday a huge crisis happened. He couldn’t even say goodbye to Edith it was so bad. He was totally exhausted thinking about it and trying to remember exactly what happened so I forgave him. He did validate how hard it was for me.

Besides Edith leaving two other PRCS (who honestly weren’t that great anyway are leaving. It’s putting the department in a bad position with two new people in training and then more being trained soon. Not a lot of stability. But the good news is I get to go back on the applicant hunt. He said he’s been making calls and setting up interviews based on what I’ve gathered the last time so I’m so happy. I added to it that experience or training of expressive arts therapy is a plus so we’ll see if we get any creative arts people. If this wewre MA exopressive arts people would be flooding in from all sides. People must still be on holiday break. Only got three aps so far on this round that are ok nothing striking. But probably people will sit down over the weekend to job hunt so am sure I’ll get more. I love how accessible the site is and how much you do get in terms of applications. And it’s easy to sort through everything at least for me. So I’m so happy to be of help after all he does.

We had a minor scare when we accidentally put the braillenote charger in with the HP computer to get sent out instead of the computer charger. Mr. J just had them swap out the cords since it hasn’t been shipped up and he knows the fedix b guy.

So that’s settled. Also met Stephanie the newest PRC. That Monica’s been so thrilled with. Stephanie is extremely engaged and confident and up beat. It really made me feel like this was someone I could connect with. Krystal not showing up until late was not a good thing. It was the plan to transfer most of Edith’s people over to Stephanie anyway so will do that next week I believe. Anna who I met a few weeks ago with Edith is also good. With me doing the applicant search we should get some great people!

Anyway tomorrow can just relax am feeling much more relaxed about life. And Sunday we do our monthly Walmart shopping trip.

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